Other Titles
Women affected with cancer: Research and practice [Session]
Abstract
Session presented on Sunday, November 8, 2015:
Background: In the United States, about 5% of breast cancer survivors are premenopausal (young) at diagnosis. Young breast cancer survivors (YBCS) have greater health disparities than older survivors: higher incidence of advanced disease, mortality, and poorer quality of life. YBCS report age-specific survivorship needs (e.g. managing children and family relationships, sexuality, cognitive demands, and work) in addition to general survivorship needs. The Young Breast Cancer Survivorship Network (led by trained oncology nurses) is adapted from an evidence-based survivorship tool that addresses age-specific needs by educating, supporting, and networking among YBCS and community stakeholders. Using the community-based participatory research (CBPR) model in the context of young breast cancer survivorship in central Alabama, the Network engaged equitable partners to design and disseminate age-specific education within four outreach components: (1) survivorship service referral; (2) monthly education and support seminars; (3) annual workshop; and (4) electronic education via website and Facebook.
Methods: Partners (YBCS and other community stakeholders) completed surveys after each seminar and workshop. Data were analyzed for age-specific needs. A YBCS advisory board met to validate identified themes that were subsequently adapted for dissemination in the Network's components. Component data were tracked.
Results: In 2 years, the Network referred 83 YBCS for services and provided 16 seminars to 149 attendees. On a 1-10 scale, attendees highly rated helpfulness (9.7) and meeting survivorship needs (9.8). Participants stated that their objectives were met (99%) and information was useful (100%). The Network's 2 annual workshops educated 173 YBCS, families, and healthcare providers with high helpfulness and satisfaction ratings. The Network website, housing 46 electronic tip-sheets and community partners links, and Facebook page respectively had 290 daily visits and 165 likes.
Discussion: Age-specific survivorship education was disseminated through partner engagement. Further study of YBCS using CBPR can improve education delivery and decrease health disparities among YBCS. Future directions of the Network include expansion of dissemination through internet and social media presence.
Sigma Membership
Nu at-Large
Type
Presentation
Format Type
Text-based Document
Study Design/Type
N/A
Research Approach
N/A
Keywords:
Breast Cancer, Survivorship, Community-based Education
Recommended Citation
Nolan, Timiya S.; Meneses, Karen; and Camata, Silvia Gisiger, "Engaging the community to deliver educational programming for young breast cancer survivors" (2016). Convention. 240.
https://www.sigmarepository.org/convention/2015/presentations_2015/240
Conference Name
43rd Biennial Convention
Conference Host
Sigma Theta Tau International
Conference Location
Las Vegas, Nevada, USA
Conference Year
2015
Rights Holder
All rights reserved by the author(s) and/or publisher(s) listed in this item record unless relinquished in whole or part by a rights notation or a Creative Commons License present in this item record.
All permission requests should be directed accordingly and not to the Sigma Repository.
All submitting authors or publishers have affirmed that when using material in their work where they do not own copyright, they have obtained permission of the copyright holder prior to submission and the rights holder has been acknowledged as necessary.
Acquisition
Proxy-submission
Engaging the community to deliver educational programming for young breast cancer survivors
Las Vegas, Nevada, USA
Session presented on Sunday, November 8, 2015:
Background: In the United States, about 5% of breast cancer survivors are premenopausal (young) at diagnosis. Young breast cancer survivors (YBCS) have greater health disparities than older survivors: higher incidence of advanced disease, mortality, and poorer quality of life. YBCS report age-specific survivorship needs (e.g. managing children and family relationships, sexuality, cognitive demands, and work) in addition to general survivorship needs. The Young Breast Cancer Survivorship Network (led by trained oncology nurses) is adapted from an evidence-based survivorship tool that addresses age-specific needs by educating, supporting, and networking among YBCS and community stakeholders. Using the community-based participatory research (CBPR) model in the context of young breast cancer survivorship in central Alabama, the Network engaged equitable partners to design and disseminate age-specific education within four outreach components: (1) survivorship service referral; (2) monthly education and support seminars; (3) annual workshop; and (4) electronic education via website and Facebook.
Methods: Partners (YBCS and other community stakeholders) completed surveys after each seminar and workshop. Data were analyzed for age-specific needs. A YBCS advisory board met to validate identified themes that were subsequently adapted for dissemination in the Network's components. Component data were tracked.
Results: In 2 years, the Network referred 83 YBCS for services and provided 16 seminars to 149 attendees. On a 1-10 scale, attendees highly rated helpfulness (9.7) and meeting survivorship needs (9.8). Participants stated that their objectives were met (99%) and information was useful (100%). The Network's 2 annual workshops educated 173 YBCS, families, and healthcare providers with high helpfulness and satisfaction ratings. The Network website, housing 46 electronic tip-sheets and community partners links, and Facebook page respectively had 290 daily visits and 165 likes.
Discussion: Age-specific survivorship education was disseminated through partner engagement. Further study of YBCS using CBPR can improve education delivery and decrease health disparities among YBCS. Future directions of the Network include expansion of dissemination through internet and social media presence.
Description
43rd Biennial Convention 2015 Theme: Serve Locally, Transform Regionally, Lead Globally.