Abstract

Medical advances result in children living with conditions requiring parental complex healthcare decision-making. Pediatric palliative care team support may decrease negative consequences. A grounded theory study was developed and strengthened during a community healthcare partner's IRB process to explore the process of decision-making for parents who consult with palliative care.

Description

44th Biennial Convention 2017 Theme: Influence Through Action: Advancing Global Health, Nursing, and Midwifery.

Author Details

Elizabeth A. Olafson, MSN, MSEd, BSN, Christine E. Lynn College of Nursing, Florida Atlantic University, Boca Raton, Florida, USA

Sigma Membership

Pi Alpha

Lead Author Affiliation

Florida Atlantic University, Boca Raton, Florida, USA

Type

Poster

Format Type

Text-based Document

Study Design/Type

N/A

Research Approach

N/A

Keywords:

Collaborative IRB Approval, Parental Healthcare Decision Making, Pediatric Palliative Care

Conference Name

44th Biennial Convention

Conference Host

Sigma Theta Tau International

Conference Location

Indianapolis, Indiana, USA

Conference Year

2017

Rights Holder

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Acquisition

Proxy-submission

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Parental palliative care decision-making: A collaborative approach to protocol development and IRB approval

Indianapolis, Indiana, USA

Medical advances result in children living with conditions requiring parental complex healthcare decision-making. Pediatric palliative care team support may decrease negative consequences. A grounded theory study was developed and strengthened during a community healthcare partner's IRB process to explore the process of decision-making for parents who consult with palliative care.