Other Titles
Conducting patient-centered comparative effectiveness research: Exemplars from the field [Symposium]
Abstract
The Rare Epilepsy Network is a data base built for and by people/families with a rare epilepsy. It is part of PCORnet and is designed to provide a place for patients and researchers to design studies important to those with the diagnosis of a rare epilepsy.
Notes
This record is part of an event symposium session. To locate other records associated with this symposium session, search the repository using the Alternative Title.
Sigma Membership
Alpha
Lead Author Affiliation
Indiana University, Indianapolis, Indiana, USA
Type
Presentation
Format Type
Text-based Document
Study Design/Type
N/A
Research Approach
N/A
Keywords:
Research, Patient Engagement, Rare Epilepsy
Recommended Citation
Buelow, Janice, "Rare Epilepsy Network: A PCORnet Study to engage patients in research" (2017). Convention. 434.
https://www.sigmarepository.org/convention/2017/presentations_2017/434
Conference Name
44th Biennial Convention
Conference Host
Sigma Theta Tau International
Conference Location
Indianapolis, Indiana, USA
Conference Year
2017
Rights Holder
All rights reserved by the author(s) and/or publisher(s) listed in this item record unless relinquished in whole or part by a rights notation or a Creative Commons License present in this item record.
All permission requests should be directed accordingly and not to the Sigma Repository.
All submitting authors or publishers have affirmed that when using material in their work where they do not own copyright, they have obtained permission of the copyright holder prior to submission and the rights holder has been acknowledged as necessary.
Acquisition
Proxy-submission
Rare Epilepsy Network: A PCORnet Study to engage patients in research
Indianapolis, Indiana, USA
The Rare Epilepsy Network is a data base built for and by people/families with a rare epilepsy. It is part of PCORnet and is designed to provide a place for patients and researchers to design studies important to those with the diagnosis of a rare epilepsy.
Description
44th Biennial Convention 2017 Theme: Influence Through Action: Advancing Global Health, Nursing, and Midwifery.