Abstract
The purpose of this study is to advance theoretical understanding of how an adolescent with incurable cancer prepares for end-of-life (EOL). A theoretical model was developed to link awareness, acceptance, and willingness to take action to EOL preparedness (knowledge about EOL, acknowledgement of grief and emotion, identification of the meaning of death and spirituality, and conceptualization of personal plan) and communication about EOL preferences and priorities; and to determine impact on quality of life (QOL).
Sigma Membership
Alpha
Type
Dissertation
Format Type
Text-based Document
Study Design/Type
Case Study/Series
Research Approach
Mixed/Multi Method Research
Keywords:
Adolescents, Quality of Life, End-of-Life Preparedness, Incurable Cancer
Advisor
Victoria L. Champion
Second Advisor
Marion E. Broome
Third Advisor
Rose M. Mays
Fourth Advisor
Anna M. McDaniel
Degree
PhD
Degree Grantor
Indiana University
Degree Year
2011
Recommended Citation
Bell, Cynthia J., "Understanding quality of life in adolescents living with advanced cancer" (2022). Dissertations. 1133.
https://www.sigmarepository.org/dissertations/1133
Rights Holder
All rights reserved by the author(s) and/or publisher(s) listed in this item record unless relinquished in whole or part by a rights notation or a Creative Commons License present in this item record.
All permission requests should be directed accordingly and not to the Sigma Repository.
All submitting authors or publishers have affirmed that when using material in their work where they do not own copyright, they have obtained permission of the copyright holder prior to submission and the rights holder has been acknowledged as necessary.
Review Type
None: Degree-based Submission
Acquisition
Proxy-submission
Date of Issue
2022-01-27
Full Text of Presentation
wf_yes
Description
This dissertation has also been disseminated through the ProQuest Dissertations and Theses database. Dissertation/thesis number: 3456441; ProQuest document ID: 872087278. The author still retains copyright.