Abstract
Although society is facing a new challenge of supporting an increasing prevalence of children with chronic illnesses, families always have known the joys and hardships of care. The literature (Cystic Fibrosis Foundation, 1993; Gortmaker, et al.) supported the growing difficulty many families have caring for their children related to family isolation, decreasing community resources, and the new morbidities. Families are caught between an environment supposed to be and presumed helpful, and one creating barriers to their children's successes. For children with cystic fibrosis and their families, the disease imposes complicated treatment regimens, frequent hospitalizations, and the specter of an early death. The investigator used a descriptive-exploratory approach to answer the research questions, "How able are elementary school-age children with cystic fibrosis to achieve the developmental tasks of the early school period?" and "What do families do to promote achievement?"
Sigma Membership
Epsilon Phi
Type
Dissertation
Format Type
Text-based Document
Study Design/Type
Other
Research Approach
Qualitative Research
Keywords:
Pediatric Chronic Illness, Childhood Development, Families With Ill Children
Advisor
Sara Arneson
Degree
PhD
Degree Grantor
University of Virginia
Degree Year
1993
Recommended Citation
Malachowski, Judith Marie, "A celebration of family: Family actions supporting task achievement in elementary school-age children with cystic fibrosis" (2019). Dissertations. 1213.
https://www.sigmarepository.org/dissertations/1213
Rights Holder
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All permission requests should be directed accordingly and not to the Sigma Repository.
All submitting authors or publishers have affirmed that when using material in their work where they do not own copyright, they have obtained permission of the copyright holder prior to submission and the rights holder has been acknowledged as necessary.
Review Type
None: Degree-based Submission
Acquisition
Proxy-submission
Date of Issue
2019-05-06
Full Text of Presentation
wf_yes
Description
This dissertation has also been disseminated through the ProQuest Dissertations and Theses database. Dissertation/thesis number: 9400785; ProQuest document ID: 304092621. The author still retains copyright.