Abstract

Children with neurodegenerative, life-threatening illnesses account for a significant proportion of children requiring palliative care. Most of their care is provided at home by their families. Yet, there is a paucity of research that examines families' experiences when a child is dying at home. This grounded theory study generated a contextually-grounded description of families' experiences of living with a child who has a neurodegenerative, life-threatening illness, and how those experiences changed over time; the impact on families; and families' perceptions of factors that influenced their ability to care for their children.

Description

This dissertation has also been disseminated through the ProQuest Dissertations and Theses database. Dissertation/thesis number: NQ38981; ProQuest document ID: 304577553. The author still retains copyright.

Rose G. Steele

Author Details

Rose G. Steele, PhD, RN

Sigma Membership

Lambda Pi at-Large

Type

Dissertation

Format Type

Text-based Document

Study Design/Type

Grounded Theory

Research Approach

Qualitative Research

Keywords:

Children with Chronic Illnesses, Palliative Care for Children, Family Relationships

Advisor

Betty Davies

Degree

PhD

Degree Grantor

The University of British Columbia

Degree Year

1999

Rights Holder

All rights reserved by the author(s) and/or publisher(s) listed in this item record unless relinquished in whole or part by a rights notation or a Creative Commons License present in this item record.

All permission requests should be directed accordingly and not to the Sigma Repository.

All submitting authors or publishers have affirmed that when using material in their work where they do not own copyright, they have obtained permission of the copyright holder prior to submission and the rights holder has been acknowledged as necessary.

Review Type

None: Degree-based Submission

Acquisition

Proxy-submission

Date of Issue

2019-12-10

Full Text of Presentation

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