Abstract

Parents caring for a child with an acquired disability often report a negative impact on physical, psychological, emotional, and spiritual health associated with caregiver burden related to their child's complex health needs. This is further complicated by additional challenges related to the loss of a previously healthy child. Traditional patterns of loss follow linear, time-bound stages that have been observed to be unrelated to the experiences of these specific parents and their families. Therefore, the concept transforming loss has been developed to better understand how these parents navigate loss and find meaning in spite of their suffering.

The purpose of this study was to (1) gather empirical evidence about the concept of transforming loss, and (2) use the evidence to offer guidance for nursing practice on how to assist families who are navigating these significant life experiences. The research question was, "How do parents describe living through the experience of caring for a child with an acquired disability?"

Description

Dr. Phillips was a recipient of a Sigma Small Grant. The report can be found here: https://www.sigmarepository.org/grant_reports/156/

Author Details

Brad Phillips, PhD, RN, CNE

Sigma Membership

Alpha Rho

Type

Dissertation

Format Type

Text-based Document

Study Design/Type

N/A

Research Approach

Qualitative Research

Keywords:

Caregiver Burden, Trasnforming with Loss, Children with Disabilities, Parent Caregivers

Advisor

Roger Carpenter

Second Advisor

Mary Jane Smith

Third Advisor

Tina Antill Keener

Fourth Advisor

Terrah Akard

Degree

PhD

Degree Grantor

West Virginia University

Degree Year

2022

Rights Holder

All rights reserved by the author(s) and/or publisher(s) listed in this item record unless relinquished in whole or part by a rights notation or a Creative Commons License present in this item record.

All permission requests should be directed accordingly and not to the Sigma Repository.

All submitting authors or publishers have affirmed that when using material in their work where they do not own copyright, they have obtained permission of the copyright holder prior to submission and the rights holder has been acknowledged as necessary.

Review Type

None: Degree-based Submission

Acquisition

Proxy-submission

Date of Issue

2024-03-05

Full Text of Presentation

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