Abstract

Few U.S. dementia care programs are led by advanced practice registered nurses (APRNs), including a dementia patient-centered medical home, the Integrated Memory Care Clinic (IMCC) at Emory Healthcare. To our best knowledge, the IMCC is the only U.S. dementia care program where primary care and dementia care are provided simultaneously. This study aimed to explore the experiences of caregivers of persons living with dementia (PLWD) and PLWD (as reported by their caregivers) at the IMCC. This prospective longitudinal cohort study employed quantitative and qualitative methods. The study began with a scoping review of the U.S. dementia care programs. Caregivers participated in three assessments that evaluated caregivers' health status and psychological well-being and PLWDs' dementia-related symptoms and quality of life. Forty-nine caregivers completed the baseline assessment. Mixed linear models were used to evaluate changes in client-centered outcomes. A sub-sample of 12 caregivers participated in telephone qualitative interviews six months post-baseline. Five outcomes decreased significantly (signifying improvements) with time as the only predictor: caregivers' distress regarding their PLWDs' delusions (p=0.048) and their PLWDs' anxiety (p=0.018), and severity of PLWDs' delusions (p=0.032), depressive symptoms (p

Author Details

Mariya Alekseyevna Kovaleva, PhD, MS, RN, AGPCNP-BC

Sigma Membership

Non-member

Type

Dissertation

Format Type

Text-based Document

Study Design/Type

Cohort

Research Approach

Mixed/Multi Method Research

Keywords:

Caregivers, Dementia, Alzheimer's Disease, Advanced Practice Registered Nurses, Collaborative Dementia Care Models, Primary Care, Dementia Care, Aging

Advisor

Kenneth Hepburn

Second Advisor

Carolyn Clevenger

Third Advisor

Patricia Griffiths

Fourth Advisor

Bonnie M. Jennings

Degree

PhD

Degree Grantor

Emory University

Degree Year

2018

Rights Holder

All rights reserved by the author(s) and/or publisher(s) listed in this item record unless relinquished in whole or part by a rights notation or a Creative Commons License present in this item record.

All permission requests should be directed accordingly and not to the Sigma Repository.

All submitting authors or publishers have affirmed that when using material in their work where they do not own copyright, they have obtained permission of the copyright holder prior to submission and the rights holder has been acknowledged as necessary.

Review Type

None: Degree-based Submission

Acquisition

Self-submission

Date of Issue

2019-04-22

Full Text of Presentation

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