Abstract

Background. While a large proportion of youth with intellectual disabilities (ID) live with chronic health conditions, it is unlikely that these individuals will be prepared to participate in health-related decisions. Purpose. This study examined the phenomenon of health-related decision-making among young adults with cerebral palsy and mild or borderline ID. The specific clinical context for the study was the decision to receive intramuscular injections of botulinum toxin type A (Botox) for skeletal muscle spasticity. Methods. A multicase methodology was used, based on a narrative approach.

Description

This dissertation has also been disseminated through the ProQuest Dissertations and Theses database. Dissertation/thesis number: 3408371; ProQuest document ID: 580628473. The author still retains copyright.

John L. Belew

Author Details

John L. Belew, PhD, MS, RN, CDDN

Sigma Membership

Zeta

Type

Dissertation

Format Type

Text-based Document

Study Design/Type

Case Study/Series

Research Approach

Qualitative Research

Keywords:

Cerebral Palsy Treatments, Patient Autonomy, Intellectual Disabilities

Advisor

Barbara J. Leonard

Degree

PhD

Degree Grantor

University of Minnesota

Degree Year

2010

Rights Holder

All rights reserved by the author(s) and/or publisher(s) listed in this item record unless relinquished in whole or part by a rights notation or a Creative Commons License present in this item record.

All permission requests should be directed accordingly and not to the Sigma Repository.

All submitting authors or publishers have affirmed that when using material in their work where they do not own copyright, they have obtained permission of the copyright holder prior to submission and the rights holder has been acknowledged as necessary.

Review Type

None: Degree-based Submission

Acquisition

Proxy-submission

Date of Issue

2020-05-06

Full Text of Presentation

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