Abstract

The purpose of this exploratory study was to describe the lived experiences of rural women with systemic lupus erythematosus (lupus). A qualitative research design was used, employing a convenience sample of 20 women with lupus. Participants were identified using a snowball sampling technique. In-depth telephone interviews with a semi-structured format were used to garner information. A phenomenological, narrative and life history approach was used to analyze the data. Seven domains—lupus concept, diagnosis response, perception of cause, lupus triggers, lupus control, living with lupus, and support were used to examine the lived experiences of participants. Twenty-one themes emerged from the data surrounding the domains. Themes were supported with quotes, narratives, and life histories.

Description

This dissertation has also been disseminated through the ProQuest Dissertations and Theses database. Dissertation/thesis number: 3065381; ProQuest document ID: 275874623. The author still retains copyright.

Author Details

Richelle A. Rennegarbe, PhD, RN, CENP, CPPS

Sigma Membership

Psi Epsilon

Type

Dissertation

Format Type

Text-based Document

Study Design/Type

Exploratory

Research Approach

Qualitative Research

Keywords:

Chronic Illnesses, Rural Healthcare, Systemic Lupus Erythematosus, Women, Illness Management

Advisor

Kathleen Welshimer

Second Advisor

Roberta Ogletree

Third Advisor

Judy Drolet

Fourth Advisor

Patrick Dilly

Degree

PhD

Degree Grantor

Southern Illinois University Carbondale

Degree Year

2002

Rights Holder

All rights reserved by the author(s) and/or publisher(s) listed in this item record unless relinquished in whole or part by a rights notation or a Creative Commons License present in this item record.

All permission requests should be directed accordingly and not to the Sigma Repository.

All submitting authors or publishers have affirmed that when using material in their work where they do not own copyright, they have obtained permission of the copyright holder prior to submission and the rights holder has been acknowledged as necessary.

Review Type

None: Degree-based Submission

Acquisition

Proxy-submission

Date of Issue

2022-01-21

Full Text of Presentation

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