Abstract

CONTEXT: The role that culture and language has on a person's perception of the caregiving experience has not been explored. Neither have appropriate instruments been developed to explore the concept of burden that are culturally sensitive and linguistically congruent. Furthermore, there is not a Spanish word that is equivalent to the English word burden. AIMS: 1. To describe the perceptions of the caregiving experience of bilingual (Spanish-English) and monolingual (Spanish) Latino/Hispanic family caregivers of patients with Alzheimer's disease (AD). 2. To describe the culturally and linguistically relevant expressions and terminology used by bilingual and monolingual Latino/Hispanic AD family caregivers to identify the consequences of caregiving on their lives. METHODS: Bilingual and monolingual (Spanish) Latino/Hispanic AD caregivers were recruited. An ethnographic approach as described by Spradley was used to interview the caregivers and analyze the data. Grand tour questions and probes were tested during preliminary work to ensure that the descriptive questions and domain analysis were complete. The domain analysis is followed by taxonomic and componential analyses of data generated with structural and contrast questions. IMPLICATIONS: Findings may enhance the understanding of the concept of burden within the context of the Latino/Hispanic culture. Ultimately, this can result in better interventions to improve the quality of life of Latino/Hispanic AD caregivers.

Author Details

Lyda Consuelo Arevalo-Flechas, PhD, RN

Sigma Membership

Delta Alpha at-Large

Type

Dissertation

Format Type

Text-based Document

Study Design/Type

Ethnography

Research Approach

Qualitative Research

Keywords:

Caregiving Across Cultures, Latinx/Hispanic Caregivers, Alzheimer's Patient Caregivers

Advisor

Sharon L. Lewis

Degree

PhD

Degree Grantor

The University of Texas Health Science Center at San Antonio

Degree Year

2008

Rights Holder

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All permission requests should be directed accordingly and not to the Sigma Repository.

All submitting authors or publishers have affirmed that when using material in their work where they do not own copyright, they have obtained permission of the copyright holder prior to submission and the rights holder has been acknowledged as necessary.

Review Type

None: Degree-based Submission

Acquisition

Proxy-submission

Date of Issue

2020-03-23

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