Abstract

Yearly, approximately 500,000 children live with life-limiting conditions in the United States; 50,000 die. Yet, details regarding children's days of living as dying are unknown. The aim of this qualitative hermeneutic study is to gain understanding of the phenomenon of living as a dying child. A Gadamerian-inspired approach was implemented to underpin the study, and to analyze poetic text to address the research question: What is it to be living as a dying child? The text sample included 499 poems written by Mattie J. T. Stepanek, a dying child. The Settecase-Wu Conceptual Guide was developed and implemented to ensure accuracy of the hermeneutic process application, and to provide a decision trail for the research findings. Three themes regarding the phenomenon emerged from this hermeneutic analysis: tenderness, time, and transcendence. Rich descriptions with textual representation of these themes in the poetic sample illustrate a shared understanding of the phenomenon between this researcher and the author regarding living as a dying child. Trustworthiness of the findings is established. Examination of the themes through a Rogerian theoretical lens enables application of the themes in Nursing Practice. Implications for Nursing, limitations and strengths of the study, recommendations for further Nursing research, and reflection of the researcher's experience conclude the study.

Description

This dissertation has also been disseminated through the ProQuest Dissertations and Theses database. Dissertation/thesis number: 13862845; ProQuest document ID: 2235422573. The author still retains copyright.

Author Details

Corinne A. Settecase-Wu, PhD, RN

Sigma Membership

Upsilon

Type

Dissertation

Format Type

Text-based Document

Study Design/Type

Other

Research Approach

Qualitative Research

Keywords:

Text Interpretations, Nurse-Patient Relationships, Life-Limiting Illnesses

Advisor

Martha Velasco-Whetsell

Second Advisor

Steven L. Baumann

Degree

PhD

Degree Grantor

The City University of New York

Degree Year

2019

Rights Holder

All rights reserved by the author(s) and/or publisher(s) listed in this item record unless relinquished in whole or part by a rights notation or a Creative Commons License present in this item record.

All permission requests should be directed accordingly and not to the Sigma Repository.

All submitting authors or publishers have affirmed that when using material in their work where they do not own copyright, they have obtained permission of the copyright holder prior to submission and the rights holder has been acknowledged as necessary.

Review Type

None: Degree-based Submission

Acquisition

Proxy-submission

Date of Issue

2023-01-27

Full Text of Presentation

wf_yes

Share

COinS