Abstract

Despite the large number of children with autism spectrum disorder (ASD) who are annually aging out of the school-based systems in the United States, much of the academic literature has been focused on the concerns and challenges of preschool or school-aged children with ASD. As a result, there lacks a clear understanding of how primary caregivers of adult children with severe autism spectrum disorder (SASD) utilize various forms of capital to navigate care.

This study proposed to fill that gap by employing Bourdieu's notions of capital as a theoretical framework for the interview protocol to address accessing community services, securing long-term housing arrangements, and planning for future care of their adult child with SASD. This study is a qualitative descriptive study to explore some of the challenges experienced by primary caregivers of adult children with SASD. Convenience sampling was used to conduct semistructured interviews with caregivers, mothers, fathers, and other relatives, who are currently in a primary parenting role for an adult child with SASD. This study utilized a qualitative content analysis process to develop meaning units, codes, categories, and themes.

Description

This dissertation has also been disseminated through the ProQuest Dissertations and Theses database. Dissertation/thesis number: 30425030; ProQuest document ID: 2811112787. The author still retains copyright.

Author Details

Andrea Palerino, PhD, PPCNP-BC

Sigma Membership

Iota Delta at-Large

Type

Dissertation

Format Type

Text-based Document

Study Design/Type

Other

Research Approach

Qualitative Research

Keywords:

Autism Spectrum Disorder, Adult Children, Parental Response, Policy Makers

Advisor

Juan Battle

Second Advisor

Barbara DiCicco-Bloom

Third Advisor

Caroline Gelman

Degree

PhD

Degree Grantor

The City University of New York

Degree Year

2023

Rights Holder

All rights reserved by the author(s) and/or publisher(s) listed in this item record unless relinquished in whole or part by a rights notation or a Creative Commons License present in this item record.

All permission requests should be directed accordingly and not to the Sigma Repository.

All submitting authors or publishers have affirmed that when using material in their work where they do not own copyright, they have obtained permission of the copyright holder prior to submission and the rights holder has been acknowledged as necessary.

Review Type

None: Degree-based Submission

Acquisition

Proxy-submission

Date of Issue

2023-12-04

Full Text of Presentation

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