Abstract

The current study utilizes initial baseline data from a National Institutes of Health-funded pilot study titled, "Creating Avenues for Parent Advocacy: An Intervention for Parents of Children with Epilepsy and Significant Learning Problems" (Buelow, 2010). The relationships of family needs (need for information, family and social support, financial support, help related to explaining to others, child care, professional support, and community services), family empowerment, and quality of life (emotional, time, and activity) to parental perceptions of family social supports in families with children with epilepsy were explored. Family needs for financial support, help regarding explaining to others, and professional support, as well as family needs total scores were associated with parental perceptions of social support. However, there were no relationships between the family need for information, family and social support, child care, or community services, respectively, and parental perceptions of social support. Similarly, there was no association between family empowerment or quality of life (emotional, time, and activity), respectively, and parental perceptions of social support. Findings are discussed in regard to other literature on family social supports, as well as limitations of the current study and implications for future research.

Description

This dissertation has also been disseminated through the ProQuest Dissertations and Theses database. Dissertation/thesis number: 3628670; ProQuest document ID: 1560892494. The author still retains copyright.

Author Details

Kim Alexander Decker, PhD, RN, CNS

Sigma Membership

Alpha

Type

Dissertation

Format Type

Text-based Document

Study Design/Type

Other

Research Approach

Quantitative Research

Keywords:

Epilepsy, Family Needs, Social Supports

Advisor

David B. Estell

Degree

PhD

Degree Grantor

Indiana University

Degree Year

2014

Rights Holder

All rights reserved by the author(s) and/or publisher(s) listed in this item record unless relinquished in whole or part by a rights notation or a Creative Commons License present in this item record.

All permission requests should be directed accordingly and not to the Sigma Repository.

All submitting authors or publishers have affirmed that when using material in their work where they do not own copyright, they have obtained permission of the copyright holder prior to submission and the rights holder has been acknowledged as necessary.

Review Type

None: Degree-based Submission

Acquisition

Proxy-submission

Date of Issue

2019-02-28

Full Text of Presentation

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