Abstract

Introduction: To describe quality of life (QoL) of pediatric cardiac transplant recipients and caregivers in an urban setting, to examine differences in QoL between recipients and caregivers, and to determine an effect on QoL by the number of years post-transplant.

Method: Data were collected from 24 pediatric cardiac transplant recipients and 22 caregivers. Participants completed the PedsQL ™ 2.0 Family Impact Module and the PedsQL™ 3.0 Transplant Module. Parallel child / parent proxy report was used.

Results: Overall QoL score was positive for both caregivers and recipients. Statistical difference was found between caregivers and recipients in the Medication I Domain, Medication II Domain, and Transplant and Others Domain. Mean Medication II domain scores increased as the year's post- transplant increased.

Discussion: QoL assessments should be performed regularly and followed longitudinally for earlier identification of post cardiac transplant recipients and families in crisis.

Author Details

Lauren Kelm, DNP, CPNP; Nancy A. O'Connor; Barbara Banfield; Susan M. Hasenau

Sigma Membership

Non-member

Type

DNP Capstone Project

Format Type

Text-based Document

Study Design/Type

Quasi-Experimental Study, Other

Research Approach

Quantitative Research

Keywords:

Cardiac Transplant, Quality of Life, Pediatric

Advisor

Nancy A. O'Connor

Degree

DNP

Degree Grantor

Madonna University

Degree Year

2016

Rights Holder

All rights reserved by the author(s) and/or publisher(s) listed in this item record unless relinquished in whole or part by a rights notation or a Creative Commons License present in this item record.

All permission requests should be directed accordingly and not to the Sigma Repository.

All submitting authors or publishers have affirmed that when using material in their work where they do not own copyright, they have obtained permission of the copyright holder prior to submission and the rights holder has been acknowledged as necessary.

Review Type

None: Degree-based Submission

Acquisition

Self-submission

Date of Issue

2016-05-31

Full Text of Presentation

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Additional Files

Paper.pdf (365 kB)

Table1.pdf (27 kB)

Table2.pdf (117 kB)

Table3.pdf (20 kB)

Table4.pdf (91 kB)

Figure2.pdf (111 kB)

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