Abstract
Transitioning off cancer treatment is a momentous occasion for pediatric patients and their families, but also brings anxiety and fear, suggesting that there are unmet needs/gaps in services provided at the end of treament. After examining the process of transitioning off cancer treatment, the hematology/oncology nursing research workforce group wished to determine if the current practices at our institution are meeting the needs of our patients and their parents/caregivers.
The experiences and needs of pediatric cancer patients and their parents/caregivers at the end of treatment, as reported in the literature, are predominantly descriptive studies with small sample sizes, restricting generalizability of results. Additionally, there is limited research evaluating existing programs and services at the end of treament. The "Coming off Treatment" questionnaire (COT) (Nagel, et al., 2002) was developed to assess issues important to parents of children completing cancer therpy. Although this questionnaire has been utilized in two studies to date, no psychometric information based on the COT has been published.
The purpose of this study was to adapt the COT into End of Treatment (EOT) questionnaires for both children with cancer and their parent/caregivers, and to validate these EOT questionnaires.
Sigma Membership
Mu
Type
Poster
Format Type
Text-based Document
Study Design/Type
Other
Research Approach
Qualitative Research
Keywords:
Children, Parents, Instrument Development/instrument Validation, Cancer, Adolescent
Recommended Citation
Conway, Mary; King, Courtney; Hart, Leigh; Needham, Andrew; Holden, Elizabeth; Ruiz, Tiffany; and Lucas, Ruth, "Partnering with families to validate questionnaires assessing unmet needs of children, adolescents, and parents/caregivers at the end of cancer treatment" (2017). General Submissions: Presenations (Oral and Poster). 147.
https://www.sigmarepository.org/gen_sub_presentations/2017/posters/147
Conference Name
Annual Symposium
Conference Host
Connecticut Children's Medical Center
Conference Location
Groton, Connecticut, USA
Conference Year
2017
Rights Holder
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Review Type
Peer-review: Single Blind
Acquisition
Self-submission
Partnering with families to validate questionnaires assessing unmet needs of children, adolescents, and parents/caregivers at the end of cancer treatment
Groton, Connecticut, USA
Transitioning off cancer treatment is a momentous occasion for pediatric patients and their families, but also brings anxiety and fear, suggesting that there are unmet needs/gaps in services provided at the end of treament. After examining the process of transitioning off cancer treatment, the hematology/oncology nursing research workforce group wished to determine if the current practices at our institution are meeting the needs of our patients and their parents/caregivers.
The experiences and needs of pediatric cancer patients and their parents/caregivers at the end of treatment, as reported in the literature, are predominantly descriptive studies with small sample sizes, restricting generalizability of results. Additionally, there is limited research evaluating existing programs and services at the end of treament. The "Coming off Treatment" questionnaire (COT) (Nagel, et al., 2002) was developed to assess issues important to parents of children completing cancer therpy. Although this questionnaire has been utilized in two studies to date, no psychometric information based on the COT has been published.
The purpose of this study was to adapt the COT into End of Treatment (EOT) questionnaires for both children with cancer and their parent/caregivers, and to validate these EOT questionnaires.
Description
This research was funded by a J. Patrick Barnes Nursing Research Grant, provided by the DAISY Foundation