Other Titles
Impacting the caregivers: End-of-life nursing care
Abstract
Session presented on Sunday, July 26, 2015:
Purpose: The aim of the study was to explore the lived experience of caregivers providing home care for terminal cancer patients with the objectives of documenting their experiences of caring for relatives who are terminally ill with cancer and the needs of home caregiving in Bahrain.
Methods: The study adopted qualitative, Heideggerian, hermeneutic phenomenological design, with a purposive sample of eight family caregivers. Data was collected through one to one, in depth semi-structured interviews and analyzed using Interpretative Phenomenological Analysis.
Results: Three main themes emerged; Burdens of Care; Comforts; and Coping. The findings showed that the lived experience of home caregiving includes physical, emotional and financial burdens combined with lack of professional support. The collective experience was infused with intense emotions given the lack of adequate support that often forced caregivers to manage caregiving on their own which eventually led to negative effects in caregivers' well-being. Nevertheless, caregivers tried to maintain comforts for patients at home. They changed the home arrangement, arranged resources to ease caring and provided spiritual care. Caregivers utilized three coping mechanisms, faith, personal strategies and distribution of the care responsibilities among family members.
Conclusion: Caregivers were not prepared for home care and a recommendation from the study findings is that training should be given on nursing care before patients discharge. In addition, home nursing care and hospice services need to be established to improve the supportive services for caregivers. The findings of the study will hopefully lay the foundation for the development of palliative care services which will ease the burden of care on caregivers in Bahrain.
Sigma Membership
Unknown
Type
Presentation
Format Type
Text-based Document
Study Design/Type
N/A
Research Approach
N/A
Keywords:
Family Caregivers, End of Life Care EOL, Palliative Care
Recommended Citation
Mohamed, Fatima Saleh, "The lived experience of caregivers providing home care for terminal cancer patients: A phenomenological study" (2016). INRC (Congress). 20.
https://www.sigmarepository.org/inrc/2015/presentations_2015/20
Conference Name
26th International Nursing Research Congress
Conference Host
Sigma Theta Tau International
Conference Location
San Juan, Puerto Rico
Conference Year
2015
Rights Holder
All rights reserved by the author(s) and/or publisher(s) listed in this item record unless relinquished in whole or part by a rights notation or a Creative Commons License present in this item record.
All permission requests should be directed accordingly and not to the Sigma Repository.
All submitting authors or publishers have affirmed that when using material in their work where they do not own copyright, they have obtained permission of the copyright holder prior to submission and the rights holder has been acknowledged as necessary.
Acquisition
Proxy-submission
The lived experience of caregivers providing home care for terminal cancer patients: A phenomenological study
San Juan, Puerto Rico
Session presented on Sunday, July 26, 2015:
Purpose: The aim of the study was to explore the lived experience of caregivers providing home care for terminal cancer patients with the objectives of documenting their experiences of caring for relatives who are terminally ill with cancer and the needs of home caregiving in Bahrain.
Methods: The study adopted qualitative, Heideggerian, hermeneutic phenomenological design, with a purposive sample of eight family caregivers. Data was collected through one to one, in depth semi-structured interviews and analyzed using Interpretative Phenomenological Analysis.
Results: Three main themes emerged; Burdens of Care; Comforts; and Coping. The findings showed that the lived experience of home caregiving includes physical, emotional and financial burdens combined with lack of professional support. The collective experience was infused with intense emotions given the lack of adequate support that often forced caregivers to manage caregiving on their own which eventually led to negative effects in caregivers' well-being. Nevertheless, caregivers tried to maintain comforts for patients at home. They changed the home arrangement, arranged resources to ease caring and provided spiritual care. Caregivers utilized three coping mechanisms, faith, personal strategies and distribution of the care responsibilities among family members.
Conclusion: Caregivers were not prepared for home care and a recommendation from the study findings is that training should be given on nursing care before patients discharge. In addition, home nursing care and hospice services need to be established to improve the supportive services for caregivers. The findings of the study will hopefully lay the foundation for the development of palliative care services which will ease the burden of care on caregivers in Bahrain.