Other Titles

Cognitive impairment effects on clinical outcomes

Abstract

Multiple sclerosis (MS), a chronic autoimmune-mediated demyelinating disease of the central nervous system, is estimated to affect the lives of 2.3 million persons around the world. (National MS Society, 2016). As many as 75% of those with MS may experience some cognitive dysfunction, potentially the most disabling symptom for those with MS and their families (Amato et al., 2013). Difficulties with learning and recalling new information, attention, processing speed, and verbal fluency are the most common cognitive deficits reported by those with MS.

Historically, researchers studying those with MS have found either no relationships or weak relationships between cognitive performance measures (neuropsychological tests) and self-report measures of cognitive function (Strober, Binder, Nikelshpur, Chiaravalloti & DeLuca, 2016). In addition, health care providers may question self-reports of cognitive dysfunction because the accuracy of patients" accounts might be confounded by symptoms such as fatigue and depression. Although some have suggested that the weak correlations between self-report and cognitive performance measures indicate that self-reports are not "accurate" depictions of a person"s cognitive status, an alternative explanation is that performance and perception might reflect different aspects of cognition. Recent studies with fMRI imaging have shown that self-reported deficits in memory are correlated with structural alterations in the hippocampus of persons with MS (Pardini et al., 2014). This suggests that self-reports of cognitive function do indeed reflect structural and functional changes in the brain.

A better understanding of self-reported cognitive function in persons with MS is necessary as these measures are more useful in clinical settings than neuropsychological assessments which require specifically trained personnel and substantial time to administer. Self-report measures can be given in a short period of time and represent the individual"s perception of everyday cognitive function. The Perceived Deficits Questionnaire (PDQ) is one self-report instrument that is used to evaluate cognitive function in persons with MS (Strober et al., 2016). The purpose of this study was to assess the cognitive deficits reported by a community-based sample of persons with MS (N=183) and to explore relationships between the PDQ and other measures of cognitive function in persons with MS.

Author Details

Alexa Stuifbergen, PhD, RN, FAAN; Ashley M. Henneghan

Sigma Membership

Unknown

Lead Author Affiliation

The University of Texas at Austin, Austin, Texas, USA

Type

Presentation

Format Type

Text-based Document

Study Design/Type

N/A

Research Approach

N/A

Keywords:

Cognitive Deficits, Multiple Sclerosis, Self-Report

Conference Name

28th International Nursing Research Congress

Conference Host

Sigma Theta Tau International

Conference Location

Dublin, Ireland

Conference Year

2017

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Perceived cognitive deficits in persons with multiple sclerosis (MS)

Dublin, Ireland

Multiple sclerosis (MS), a chronic autoimmune-mediated demyelinating disease of the central nervous system, is estimated to affect the lives of 2.3 million persons around the world. (National MS Society, 2016). As many as 75% of those with MS may experience some cognitive dysfunction, potentially the most disabling symptom for those with MS and their families (Amato et al., 2013). Difficulties with learning and recalling new information, attention, processing speed, and verbal fluency are the most common cognitive deficits reported by those with MS.

Historically, researchers studying those with MS have found either no relationships or weak relationships between cognitive performance measures (neuropsychological tests) and self-report measures of cognitive function (Strober, Binder, Nikelshpur, Chiaravalloti & DeLuca, 2016). In addition, health care providers may question self-reports of cognitive dysfunction because the accuracy of patients" accounts might be confounded by symptoms such as fatigue and depression. Although some have suggested that the weak correlations between self-report and cognitive performance measures indicate that self-reports are not "accurate" depictions of a person"s cognitive status, an alternative explanation is that performance and perception might reflect different aspects of cognition. Recent studies with fMRI imaging have shown that self-reported deficits in memory are correlated with structural alterations in the hippocampus of persons with MS (Pardini et al., 2014). This suggests that self-reports of cognitive function do indeed reflect structural and functional changes in the brain.

A better understanding of self-reported cognitive function in persons with MS is necessary as these measures are more useful in clinical settings than neuropsychological assessments which require specifically trained personnel and substantial time to administer. Self-report measures can be given in a short period of time and represent the individual"s perception of everyday cognitive function. The Perceived Deficits Questionnaire (PDQ) is one self-report instrument that is used to evaluate cognitive function in persons with MS (Strober et al., 2016). The purpose of this study was to assess the cognitive deficits reported by a community-based sample of persons with MS (N=183) and to explore relationships between the PDQ and other measures of cognitive function in persons with MS.