Other Titles
Global Management of Chronic Conditions
Abstract
Rare diseases in the United States are defined as illnesses that impact fewer than 200,000 individuals concurrently. Guillain-Barre" syndrome (GBS) is an example of a rare disease that impacts the peripheral nervous system.With the eradication of polio, GBS has become the leading cause of paralysis in the U.S. GBS is an autoimmune illness that generally results in areflexia, paresthesias, and the potential for temporary yet total paralysis.
Because of the significant morbidity that patients face subsequent to the onset of this syndrome, a study was designed to better understand the patient"s experience related to this illness. The stated purpose of the study was to gain a richer understanding of the patient"s recalled experience of an acute episode of moderate to severe Guillain-Barre" syndrome.
Sigma Membership
Unknown
Lead Author Affiliation
Kennesaw State University, Kennesaw, Georgia, USA
Type
Presentation
Format Type
Text-based Document
Study Design/Type
N/A
Research Approach
N/A
Keywords:
Guillain-Barre' Syndrome, Patient Peer Support/Peer Counseling, Rare Disease
Recommended Citation
Hooks, J. Dwayne Jr., "The value of peer contact in patients impacted by "rare" diseases" (2017). INRC (Congress). 477.
https://www.sigmarepository.org/inrc/2017/presentations_2017/477
Conference Name
28th International Nursing Research Congress
Conference Host
Sigma Theta Tau International
Conference Location
Dublin, Ireland
Conference Year
2017
Rights Holder
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Acquisition
Proxy-submission
The value of peer contact in patients impacted by "rare" diseases
Dublin, Ireland
Rare diseases in the United States are defined as illnesses that impact fewer than 200,000 individuals concurrently. Guillain-Barre" syndrome (GBS) is an example of a rare disease that impacts the peripheral nervous system.With the eradication of polio, GBS has become the leading cause of paralysis in the U.S. GBS is an autoimmune illness that generally results in areflexia, paresthesias, and the potential for temporary yet total paralysis.
Because of the significant morbidity that patients face subsequent to the onset of this syndrome, a study was designed to better understand the patient"s experience related to this illness. The stated purpose of the study was to gain a richer understanding of the patient"s recalled experience of an acute episode of moderate to severe Guillain-Barre" syndrome.